I’m 24 and dealing with high blood pressure. I’ve seen five doctors, had countless tests, and they all say the same thing: “Take these pills and try to reduce pressure in your life.” It’s as though my blood pressure and heart rate have minds of their own, fluctuating freely without any reason.

For the past six months, I’ve felt like I’m on borrowed time. Every morning, I gulp down my pills, hoping I won’t have a stroke or end up disabled. Once, I dared to think I was better and skipped my meds for two days. Unfortunately, on day three, my blood pressure shot up over 150, bringing me crashing back to reality.

I’m not an nihilist, I’m the opposite of that. But facing my own mortality every second of life has hit me hard. Maybe I’m just like a “24 years old kid” tasting life’s bitterness for the first time. I hate to compare myself with others, but seeing friends partying, doing drugs, and sipping coffee just makes me hate this fate of mine even more.

I’m an artist, I studied music and wrote lots of songs (only keep them for myself, not trying to be a celebrity or anything like that…), and music has always been my escape. Lately, though, my songs have been pretty dark.

I’m sharing my story not for sympathy, but to connect with anyone else who’s going through a same journey in their life. If you’ve been there and made it out, please tell me how you did it. Any advice, hobby, or habit would help! And if you’re still stuck in the trenches like me, just know you’re not alone.

P/S: This post has been improved by ChatGPT since I’m not confident in my English.

  • z00s@lemmy.world
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    2 months ago

    OP you sound exactly like me at that age. I was diagnosed with kidney disease at 16 and got a transplant after one year of dialysis at age 27.

    Things were amazing after that but now I’ve got terminal cancer at age 41.

    Make the most of everything you’ve got while you still can.

  • MrJameGumb@lemmy.world
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    2 months ago

    I am also an artist and musician who suffers from high blood pressure! I don’t know your whole medical history so I can only tell you what works best for me.

    The biggest two things I’ve done to keep it under control are quit drinking and change my diet. It’s helped me lose a lot of weight and lowered my blood pressure significantly! I’ve always played my guitar when I’m feeling stressed and that helps a lot but lately I’ve also taken up cross stitch which has been IMMENSELY helpful to me! It’s relaxing but it also requires quite a bit of focus so I can get out of my own head and calm down. The other thing I do that’s even more helpful is just going out walking! I started out just walking around the block but now I go 4 or 5 miles with no trouble lol!

    I do take a very low dose of blood pressure medication, but my doctor has told me if I lose about 15 more pounds I won’t have to keep taking it anymore!

    I hope this was helpful!

    • Khiêm Từ@lemmy.worldOP
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      2 months ago

      Being an artist with a sensitive mind might make me prone to overthinking, which in turn can raise my stress levels. Your story really resonated with me, so thank you for sharing it!

  • Thrillhouse@lemmy.world
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    2 months ago

    You just gotta try to hang on. Life as you get older is a total question of wtf is going to happen next.

    I’m in one of those cycles.

    1. Covid
    2. Walked in on my dad almost dead from undiagnosed cancer and my childhood home trashed because everything fell apart when he was looking after my mom who has early onset dementia
    3. 2 weeks later my dad dies & I am visiting the hospital during the height of Covid. My mom has to live in the hospital and doesn’t know who I am anymore. She doesn’t know her husband died.
    4. Cancer scare. I think it will be fine? They’re still testing.
    5. Husband lost his job. I am the only breadwinner.
    6. Sister in abusive relationship with a severely mentally unstable husband who is spending all of their money. I fear every day he is going to kill her and their kids. She can’t kick him out of the house because he is on disability and can’t afford his own place.
    7. Substantial changes at my job leading to feelings of mega insecurity for me.

    Oh yeah and my mom isn’t even dead yet!

    But I’ve also had some really great experiences during this time that I wouldn’t trade for the world.

    If psychedelics are safe for you and you have no history of mental illness in your family I would strongly suggest that.

    • Khiêm Từ@lemmy.worldOP
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      2 months ago

      You’re 100000 times stronger than most people I know, including myself. I’m so sorry for all you’ve had to endure. It’s strange how hearing about others’ struggles can sometimes make us feel better, but it truly does.

  • jordanlund@lemmy.world
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    2 months ago

    Tuesday. Ended up in the ER with a massive pain in my side, felt like I had ruptured something.

    Turns out it was “Epiploic Appendagitis”, which is kind of like appendicitis but on the other side. I call it “Table of Contentsitis”.

    Not dangerous, just hurts like fuck so they loaded me up with hydromorphone.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4644543

    “hydromorphone is five to ten times more potent than morphine”.

    • Khiêm Từ@lemmy.worldOP
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      2 months ago

      Thank you for sharing your story! I’m sorry to hear about your experience, hope you recover soon and never have to endure anything like that again.

  • Today@lemmy.world
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    2 months ago

    I had an uncle who went on bp meds at 16. It kept him from being drafted and he passed at age 82. Sometimes it’s just genetics. The concern with high blood pressure is what it does to your body over time. Take your meds - keeping it down will help prevent/limit damage and risk. Check your bp regularly to share with your doc. There are several different types of meds and it’s not unusual to need more than one type to keep it steady. 150 is high for your age, but not usually emergency level, especially if you’re asymptomatic, unless your doc has given you other guidelines.

    • Khiêm Từ@lemmy.worldOP
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      2 months ago

      Thank you for the information! I’m sorry for your uncle, his strength in battling hypertension for that long was truly remarkable!

  • kava@lemmy.world
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    2 months ago

    Last time I felt helpless was a little less than a decade ago when I was in active heroin addiction. I knew I had a problem, I really wanted to quit, and I tried hard to quit… and I kept ignoring myself and using anyway.

    I ended up finally succeeding in staying clean after like 5 or 6 relapses, with each clean period lasting longer than the previous. Now I’ve been clean for a little over 8 years.

    I haven’t felt powerless or helpless since.

    Here’s my advice. Put one foot in front of the other and walk forwards. Just take it a day at a time and worry about what’s immediately in front of you.

  • A_Random_Idiot@lemmy.world
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    2 months ago

    I’m not an nihilist, I’m the opposite of that. But facing my own mortality every second of life has hit me hard.

    My sibling, You are not alone in living in constant terror of medical maladies that doctors have no interest in pursuing further than symptomatic treatment.

    I am in the same boat. I have seen half a dozen doctors, all at great personal expense cause I dont have insurance, and been in the ER dozens times in the past 10 years.

    and all I have is a handwave and “its probably anxiety”. Sure, I have anxiety. I have anxiety cause my heart rates over 200 for no reason. because my chest feels like an elephants sitting on it. because it feels like a flaming fist has Kali-Ma’d its way into my chest and is squeezing down in my heart. The anxiety didnt cause that shit. That shit caused the anxiety.

    As proven when they stick that big beautiful syringe of Ativan or other powerful anxiety med in my IV and I go off to no-fucks given land, yet all my symptoms stay. Just now I dont care anymore cause I’m floating on rainbows amidst femboy angels.

    But hey, my cardiac enzymes are good, and my EKG is clean (despite the 200bpm) so it just must all be in my head.

  • machinin@lemmy.world
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    2 months ago

    Marcus Aurelius was helpful to me - don’t be sad about the things you’ve lost, be grateful about what you’ve gained. He was specifically talking about the loss of a child. Some people are angry at God because he took away their child to soon. We should be grateful for even the short amount of time we had with that child. I have been able to apply it to so many other situations as well. Just living in constant gratitude can make your life so much better.

    • Khiêm Từ@lemmy.worldOP
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      2 months ago

      I also believe that philosophy could be invaluable during times like these, offering us new perspectives on life’s challenges. Thanks a bunch for your suggestion!

  • Call me Lenny/Leni@lemm.ee
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    2 months ago

    We’re all humans. In some way, shape, or form, we all feel helpless about one thing or another to an extent. People are poorly built for independence, especially if talking about in the form of single person homes, nuclear families, and jobs that involve a routine that’s set in stone. There is no such thing as complete soundness of mind, and parenting without the co-parenting help of the village is a huge balancing act. We are also often caught off-guard by the sheer complexity of some of the matters we face as well as those others face, with many moving parts we can piece together while others are perpetually in our blind spots. All those people you mention who go partying and drinking, although they may argue they’re living to the fullest in our crude world, take their perception of how experience works for granted. I’ve seen people whom everyone looks at with awe as the person soars to new heights before they are hit with a chronic medical condition, the one thing money can never protect you from. I myself have been reminded of my own unchangeable limits, having just the right set of circumstances that take my friends and family away from me, being pressured into resuming a past relative’s residence which moved me away from friends by a few hundred miles and invoked jealousy in my remaining family members. The truth will always be that humans will find it more ideal to be unconditionally generous and interdependent onto each other, without the cue of any system of thinking, which will be especially true as the complexity of existence increases and our intelligence grows which will cause more mental disorder to arise. I might have anhedonia, the medical community’s name for what comes off to them as a lack of motivational feelings towards the world, but I still can feel when the world lacks what it suffers without.

  • VaultBoyNewVegas@lemmy.world
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    2 months ago

    Now I’ve had a flare up of ulcerative colitis for most of the year and I was in hospital about a month ago and discharged after 6 days which was a month ago. I’m now back in hospital because my disease didn’t improve at home and now it looked like I was responding to the treatment in hospital but things are going they way they went after I was discharged so fuck knows what they’ll do. I’ve a specialist nurse in charge of my general care and a consultant who calls the shots on the treatment. The nurse wants me on a medication that’s taken as an IV ASAP and the consultant wants me to take the previous prescribed medication that hasn’t worked despite working in 48 hours according to the manufacturer. So as the current treatment probably won’t work I fucking hope that the consultant don’t just decide “eh fuck it, let’s just open up his bowel and give the fucker a stoma bag”

    I’m not in the US by the way I’m the UK and the NHS where I live is actually pretty good and the staff in general is great I’m the hospital I’m in and my nurse is great. I just don’t really like my consultant as any time he’s seen me in hospital it’s only for a minute asking how I’ve been and then he fucks off. It’s like he’s not interested in really finding out things in depth whereas the nurse and I will discuss things and she’ll explain why certain foods are harmful for me during a flare and how to work around that and she’ll explain the medication I’m on.

  • Kaiyoto@lemmy.world
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    2 months ago

    Lately I’ve felt helpless in that I can’t seem to get out of this rut. Other times in my life that I can think of was when I was getting paid minimum wage and couldn’t pay the debt I was dumb and racked up many years ago. Another time was when I was in an abusive relationship that I didn’t understand that I could end.

    I’m sure there are many others but those stand out to me at the moment.

      • VaultBoyNewVegas@lemmy.world
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        2 months ago

        Yep. I’ve IBD and i can’t ear onions, garlic or even veggies in general unless they’re boiled really soft as they fuck with my gut but I can eat a donut ok and would be encouraged to because of the sugar in it. Most people wouldn’t tell me to not avoid veggies unless really soft as most people think fruit and veggies are great as they’re healthy but the the care team I have which includes a consultant and a nurse who specialize in my disease have to me nope.

      • Victor@lemmy.world
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        2 months ago

        I hope it works! LCHF seems to work for all kinds of ailments. Even diabetes. Very cool stuff. But yes, obviously consult your doctor, and make sure it’s a good, scientific doctor that listens to up-to-date, peer-reviewed research.

  • Lemminary@lemmy.world
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    2 months ago

    Pfft, like every other day.

    E: Sorry, looking back this sounds insensitive but I do mean it. It’s tough doing the basic things sometimes but I’m trying.